Blog
Rare Disease Day 2025 social media campaign
#RareDiseaseDay falls on my birthday each year: 28th February. It’s really important to me to continue raising awareness of leukodystrophies and other rare diseases, so I took part in a social media campaign for Alex TLC to briefly share how it’s challenging to live with a long-term ailment. Like I wrote there — it is NOT a life sentence. 🧠🧬
Introducing ‘Snowfox’, my new creative writing project
I have at long last launched a creative writing project. This is something I’ve really wanted to do for a while now but ironically enough could never find the right words. Included are a small collection of new entries entitled “Apollo”. It’s about things that have stuck with me over the last decade of my life, some of which are based off ideas and early drafts that have existed for some time now.